Explore the Data

USIDNET V1

Explore descriptive insights from the USIDNET V1 registry and review the policies that guide use of these data.

>5,000patients represented in USIDNET V1

Registry context

Explore more insights

Within the USIDNET registry, thousands of clinical, molecular, and laboratory data points are collected from individuals with primary immunodeficiencies in the United States. Validated, de-identified data are freely disseminated to those with research questions.

USIDNET V1 was supported by an NIH grant to the Immune Deficiency Foundation.

These data are searchable under the Explore the Data tab.

Review the USIDNET Publication Policy for information regarding use of these datasets.

Interactive dashboard

USIDNET V1 dashboard

Explore registry summaries by diagnosis, category, and patient status. The interactive dashboard appears directly below this guide.

1. Choose a populationUse the dashboard filters to select a diagnosis, category, or status.
2. Explore the viewsSelect chart marks or table entries to examine the available summaries.
3. Reset or exportUse the Tableau toolbar to undo changes, restore the view, or download supported output.
Open dashboard in a new windowRequest a custom dataset

Using a phone or tablet? The dashboard contains detailed interactive views and is easiest to use on a larger screen. Opening it in a new window provides the most viewing space.

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USIDNET
USIDNET
Home
About USIDNET
Our Team
Current Sites
USIDNET V1 Sites
Publications
Abstracts
Queries
V1 Dashboard
V2 Dashboard
Data Dictionary
Find a Similar Patient
Join USIDNET
Contact us
USIDNET
USIDNET
Home
About USIDNET
Our Team
Current Sites
USIDNET V1 Sites
Publications
Abstracts
Queries
V1 Dashboard
V2 Dashboard
Data Dictionary
Find a Similar Patient
Join USIDNET
Contact us
Home
Folder: About
Back
About USIDNET
Our Team
Folder: Registry
Back
Current Sites
USIDNET V1 Sites
Publications
Abstracts
Folder: Explore the Data
Back
Queries
V1 Dashboard
V2 Dashboard
Data Dictionary
Folder: Connect
Back
Find a Similar Patient
Join USIDNET
Contact us
USIDNET — United States Immunodeficiency Network

United StatesImmunodeficiencyNetwork

AboutAbout USIDNETOur Team
RegistryCurrent SitesUSIDNET V1 SitesPublicationsAbstracts
Explore the DataV1 DashboardV2 DashboardQueries
ConnectFind a Similar PatientJoin USIDNETContact Us
NIH

The United States Immunodeficiency Network (USIDNET) is funded by a grant from the National Institute of Allergy and Infectious Diseases (NIAID) and the National Institutes of Health (NIH), R24AI171055. NIAID supports basic and applied research to better understand, treat and ultimately prevent infectious, immunologic, and allergic diseases.

The Immune Deficiency Foundation provides support for this web site.

Immune Deficiency Foundation

We also thank our partners from Industry, foundations and philanthropy for continued and generous support.