Explore the Data
Explore descriptive insights from the USIDNET V1 registry and review the policies that guide use of these data.
Registry context
Within the USIDNET registry, thousands of clinical, molecular, and laboratory data points are collected from individuals with primary immunodeficiencies in the United States. Validated, de-identified data are freely disseminated to those with research questions.
USIDNET V1 was supported by an NIH grant to the Immune Deficiency Foundation.
These data are searchable under the Explore the Data tab.
Review the USIDNET Publication Policy for information regarding use of these datasets.
Interactive dashboard
Explore registry summaries by diagnosis, category, and patient status. The interactive dashboard appears directly below this guide.
Using a phone or tablet? The dashboard contains detailed interactive views and is easiest to use on a larger screen. Opening it in a new window provides the most viewing space.