United States Immunodeficiency Network
Advancing knowledge of inborn errors of immunity
USIDNET is a research consortium that connects registry data, clinicians, researchers, and participating institutions to improve scientific understanding of immunodeficiencies.
Who we are
A network built for shared discovery
USIDNET was established to advance scientific research in immunodeficiencies/inborn errors of immunity. The network supports data collection, research, collaboration, data access, and mentoring.
Registry data
Collection of phenotype data using automated data extraction to populate a freely accessible registry.
Research
Facilitation of studies on outcomes and phenotypes using USIDNET data.
Connection
Matchmaking services connect clinicians and researchers around similar cases.
Shared standards
Collaboration with ClinGen, OMIM, MONDO and HPO improves data in other databases.
Direct access
Development of do-it-yourself (DIY) data access points supports discovery.
Mentoring
Mentoring helps trainees participate in immunodeficiency research.
Find your path
Start with what you need
Patients & families
Understand the network
Learn what USIDNET does and how registry research advances knowledge.
About USIDNETClinicians
Find a similar patient
Submit a rare or undiagnosed case for review against potential internal matches.
Use the serviceResearchers
Work with registry data
Compare datasets, review policies, and request a custom query.
Request dataInstitutions
Join the network
Review participation information and connect with the USIDNET team.
Join USIDNETExplore USIDNET research
Review registry dashboards, publications, abstracts, and participating sites.