How it works

Find a Similar Patient

Clinicians and researchers can describe a rare or undiagnosed immunodeficiency case for USIDNET to review against potential internal registry matches.

Describe a Case

Clinical connection service

A focused request, reviewed by USIDNET

  1. 1

    Describe the case

    Provide the requested clinical details without protected health information.

  2. 2

    USIDNET reviews

    The registry is reviewed for similar cases based on the information supplied.

  3. 3

    Potential matches

    USIDNET informs the submitter of any potential internal matches.

Case submission

Describe a patient

Provide the requested case information without names or other protected health information.

Before submitting

Please do not include names, dates of birth, medical record numbers, contact information, or other protected health information.