These abstracts all utilized USIDNET V1 registry data. Abstract Meeting Year Name Diversity in the United States Immunodeficiency Network (USIDNET) Patient Registry CIS 2025 Onyekaba, Michelle United States Immunodeficiency Network (USIDNET) Reimagined as a Semiautomated Data Extraction Method for Registry Building CIS 2025 Vichare, Vaibhavi Clinical Implications of Cytopenias in the U.S. Immunodeficiency Network Registry CIS 2025 Rahman, Rifat Chronic Pulmonary and Systemic Inflammatory Manifestations Associated with Interstitial Lung Disease in Patients with Common Variable Immunodeficiency CIS 2025 Cleves, Daniela Family History of Agammaglobulinemia Among Racial and Ethnic Minority Groups with X-linked Agammaglobulinemia from the USIDNET registry CIS 2023 O’Toole, Dana Interstitial cystitis in common variable immunodeficiency: Could it be another autoimmune complication? A descriptive report CIS 2023 Wang, Ben Renal Complications in Patients with Predominant Antibody Deficiency in the United States Immune Deficiency Network (USIDNET) AAAAI 2023 Materne, Emma Interstitial cystitis in common variable immunodeficiency: Could it be another autoimmune complication? A descriptive report CIS 2023 Wang, Ban Family History of Agammaglobulinemia Among Racial and Ethnic Minority Groups with X-linked Agammaglobulinemia from the USIDNET Registry CIS 2023 O'Toole, Dana Outcomes Among Racial and Ethnic Minority Groups with X-linked Agammaglobulinemia from the USIDNET Registry AAAAI 2022 O'Toole, Dana Who’s your data? Primary immune deficiency differential diagnosis prediction via machine learning and data mining of the USIDNET registry CIS 2022 Saul Lugo Reyes Pneumonia in primary antibody deficiency patients receiving immunoglobulin therapy, risk factors, and role of prophylactic antibiotics: Data from the US Immunodeficiency Network (USIDNET) CIS 2022 Hajjar, Joud Prevalence of coccidioidomycosis in primary immunodeficiency: Data from the USIDNET registry ESID 2022 Krase, Ifat & Sacco, Keith Characterizing Neutropenia in Severe Combined Immunodeficiency AAAAI 2021 Deshpande, Deepti Mortality In Combined Immunodeficiency: Data From the USIDNET Registry CIS 2021 Durkee-Shock, Jessica The Interrelationship of CVID Gastrointestinal Manifestations, Autoimmunity, Splenomegaly and Lymphoproliferative Disease CIS 2021 Wright, Hannah & Schussler, Edith The other side of the coin: immunodysregulation in primary immunodeficiency. Analysis of the United States Immunodeficiency Network (USIDNET) database CIS 2021 Chitty Lopez, Maria Neurologic Manifestations reported in Autoinflammatory Disorders and Immune Dysregulatory Diseases from the USIDNET Registry CIS 2021 Wagman, Elizabeth Endocrine-Specific Autoimmunity in Primary Immunodeficiencies: a Report from the USIDNET Registry CIS 2021 Pelletier, Teresa CTLA-4 and CVID: Analysis of USIDNET Patients CIS 2021 Ghannam, Sara & Fernandez, James Primary Immunodeficiency Diagnoses seen in Patients with Chronic Lung Disease: Findings from the USIDNET Registry AAAAI 2020 Lee, Michael X-Linked Agammaglobulinemia: Infection Frequencies in 226 Patients from the USIDNET Registry AAAAI 2020 Groth, Daniel CVID associated gastrointestinal disorders: a cohort analysis of disease phenotypes, functional status, comorbidities, and treatment AAAAI 2020 Franzblau, Lauren & Wysocki, Chris Characterizing Pneumocystis jirovecii Pneumonia in patients with Primary Immunodeficiency Disorders, Data from the US Immunodeficiency Network (USIDNET) Registry AAAAI 2020 Ochfeld, Elisa Relationship Between T Cell Lymphopenia Severity And Immune Dysregulation Among Patients With DiGeorge Syndrome AAAAI 2020 Deshpande, Deepti Chronic granulomatous disease with inflammatory bowel disease: Disease presentation, treatment, and outcomes from the USIDNET Registry CIS 2020 LaBere, Brenna Frequency of Myopathy in Primary Immunodeficiency: Data from the USIDNET Registry CIS 2020 Sacco, Keith Clinical characteristics and infectious complications in patients with rare forms of syndromic immunodeficiency: data from the USIDNET registry CIS 2020 Kim, So Lim Rheumatological Diseases in Patients with Primary Immunodeficiency Disorders in the USIDNET Registry CIS 2020 Padem, Nurcicek Association of GI status and Autoimmunity in CVID CIS 2020 Wright, Hannah Replacement immunoglobulin trends amongst patients with CVID and concurrent autoimmunity: A report from the USIDNET registry AAAAI 2019 Kennedy, Katie Clinical and laboratory features of thymoma and immunodeficiency (Good's syndrome): a report from the USIDNET registry and the Mount Sinai Hospital cohort CIS 2019 Ho, Hsi-en Granulomatous disease and lymphoma in a cohort of 1395 patients with CVID in the USIDNET Registry CIS 2019 Matias Lopes, Joao Pedro Immunodeficiency in Elderly: Data from the USIDNET Registry CIS 2019 Patel, Charmi Describing Transient T cell lymphopenia in the United States Immunodeficiency Network (USIDNET) Following Infants with Low Lymphocytes (FILL) Program and a Single Referral Center from 2010-2017 CIS 2019 Zhang, Shouling Health Disparities in CVID: A Report of 1,546 patients from the USIDNET Registry CIS 2019 Shrestha, Pragya Lymphoproliferative Disease in CVID: A Report of Types and Prevalence from a United States Patient Registry AAAAI 2019 Yakaboski, Elizabeth Renal Disease in Chronic Granulomatous Disease: Data from the USIDNET Registry AAAAI 2018 Sacco, Keith Incidence of reactivated Herpes Zoster (shingles) in patients with Primary Immune Deficiency AAAAI 2018 Lindsay, David Infectious and Non-infectious Pulmonary Complications of Primary Immunodeficiency Diseases in the USIDNET Registry AAAAI 2018 Rohr, Kaileen & Yu, Joyce Predictors of persistent respiratory infections in patients with primary antibody deficiency, data from the US Immunodeficiency network (USIDnet) AAAAI 2018 Hajjar, Joud Pulmonary Disease Burden in Primary Immune Deficiency Disorders from the USIDNET Patient Registry ATS 2018 Mehta, M Cellular Defects Amongst CVID Patients with Chronic Lung Disease in the USIDNET Cohort CIS, AAAAI 2018 Kellner, Erinn Eosinophilic Gastrointestinal Disease in Patients with Primary Immunodeficiency CIS, AAAAI 2018 Ruffner Melanie Neurologic Complications of Common Variable Immunodeficiency: Findings From the USIDNET Registry CIS 2018 Nguyen, Jenna COMORBID VASCULITIS AMONG PATIENTS IN A NATIONAL PRIMARY IMMUNODEFICIENCY DATABASE ACR/ARHP 2018 Byram, Kevin Neutropenia Is an Under-Recognized Finding in Pediatric Primary Immunodeficiency Diseases: An Analysis of the United States Immunodeficiency Network Registry ASH 2018 Michniacki, Thomas Evaluating Behavioral Problems in Patients with Primary Immunodeficiency Disorders within the US Immunodeficiency Network Registry ACAAI 2018 Jose, Jaison Differences in Pulmonary Complications in Common Variable Immunodeficiency and X-Linked Agammaglobulinemia AAAAI 2017 Weinberger, Tamar Clinical Findings of Patients with Autonomal Dominant Hyper IgE Syndrome (HIES) in USIDNET AAAAI 2017 Gernez, Yael Atopic Disease in Primary Immune Deficiency with B Cell Dysfunction Amongst A USIDNET Cohort AAAAI 2017 Harmon, Gretchen Broadening Our Understanding of the Noninfectious Disease Complications of CVID Within the United States CIS 2017 Farmer, Jocelyn Ocular manifestations in primary immunodeficiency (PID) patients within the USIDNET registry ACAAI 2017 Pham, Michele Early Transplant Improves Outcomes in Patients with Chronic Granulomatous Disease: Results from United States Immunodeficiency Network (USIDNET) ASH 2017 Yonkof, Jennifer Using EMR Data Collections to Outline SCID Clinical Phenotypes AAAAI 2016 Agarwal, Shradha Prevalence of Atopic Diseases in Patients with Humoral Primary Immunodeficiency: A Comparison of a Single Center and the US Immunodeficiency Network (USIDNET) AAAAI 2016 Chau, Alice Body Weight and Infectious Outcomes in Patients with Primary Immunodeficiency Diseases: Outcomes from within the US Immunodeficiency Network (USIDNET) AAAAI 2016 Ruffner, Melanie Extra-Immunologic Manifestations of Common Variable Immunodeficiency in Pediatric Versus Adult Patients AAAAI 2016 Sanchez, Lauren Immunoglobulin Management Approaches in American Patients with Common Variable Immune Deficiency and Autoimmunity ACAAI 2016 Kennedy, Katie Cancer in Primary Immunodeficiency Diseases: An Analysis of Cancer Incidence in the United States Immune Deficiency Network (USIDNET) Registry. ASCO 2016 Mayor, Paul Clinical Characteristics and Diagnosis in Patients with Predominantly Antibody Deficiencies: Baseline Features of Patients Enrolled in the United States Immunodeficiency Network (USIDNET) Registry CIS 2016 Antonio, Albert Tertiary Care Patients with Common Variable Immune Deficiency (CVID) Are at Similar Risk for Noninfectious Complications: A Comparative Cohort Analysis Between Partners-Affiliated Hospitals in Bos CIS 2016 Farmer, Jocelyn Increased Incidence of Fatigue in Primary Immunodeficiency Disorders, Prevalence and Associations within the USIDNET Registry. CIS 2016 Hajjar, Joud Evaluation of Penicillin Hypersensitivity in Patients with Common Variable Immunodeficiency CIS 2016 Hartmann, Heather Hyper IgM Syndrome: A Report from the USIDNET Registry CIS 2016 Leven, Emily Inflammatory Bowel Disease in X-Linked Agammaglobulinemia CIS 2016 Otani, Iris Gastrointestinal Presentations in Patients with CVID CIS 2016 Schussler, Edith Patient Reported Outcomes in PI: PROMIS 29 – QoL Survey Utilizing the IDF Electronic Personal Health Record (ePHR) Platform CIS 2016 Sullivan, Kathleen The Natural History of Children with Agammaglobulinemia and Hypogammaglobulinemia: Baseline Features of Patients Enrolled in the United States Immunodeficiency Network (USIDNET) Regist ESPR 2016 Antonio, Albert Intravenous immunoglobulin-related thromboembolic events – an accusation that proves the opposite 7th International Immunoglobulin Conference 2014 Basta, M Indications of Autoimmunity and Auto-Inflammation in X-Linked Agammaglobulinemia AAAAI 2013 Hernandez-Trujillo, Vivian Dose Evaluation for Immunoglobulin Replacement Therapy CIS 2013 Berger, Melvin Development of Atopic Diseases in Patients with Primary Humoral Immunodeficiency AAAAI 2012 Jongco, Artemio Creation of the United States immune deficiency research network (USIDNET) AAAAI 2005 Cunningham-Rundles, Charlotte, et al. X-linked agammaglobulinemia: Clinical features of 148 patients from a United States national registry AAAAI 2005 Winkelstein J, et al.
